Interlace and the gimp

Kathy Hoopman: Lisa and the Lacemaker
An Asperger Adventure
Jessica Kingsley Publishers 2002

Lisa lives largely in a world of her own, tolerating a select few friends and family members but otherwise extremely sensitive to sensory over-stimulation. But that doesn’t mean she doesn’t have a strong imagination or a rich mental landscapes; and it doesn’t mean she is unable to focus on things that matter to her, or to say things as she sees them. For Lisa, as is immediately made clear, has Asperger’s Syndrome.

One day, in the backyard of her only friend Ben—who also has Asperger’s—she unexpectedly comes across a door obscured by undergrowth. This turns out to be the lost and forgotten servants’ quarters of the Victorian house in which Ben’s family now live. In exploring it she starts to uncover its secrets, leading to family histories involving long lost loves, the ancient art of lacemaking, and the ghost of one of the dwelling’s former residents.

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Sense and sensitivity

Book title image generated by https://t2i.cvalenzuelab.com/

Gail Honeyman: Eleanor Oliphant is Completely Fine
HarperCollinsPublishers 2018 (2017)

Eleanor is a mass of contradictions: a classics graduate familiar with dead languages but having problems understanding metaphors; sensitive and yet not always displaying ‘common sense’; a creature of habit yet one who can surprise herself by occasionally straying beyond her comfort zone; seemingly happy with her own company but unprepared when she has to admit to herself to being profoundly lonely. Despite her mantra of being ‘completely fine’ she most decidedly is not.

This is a very percipient portrait of a vulnerable young woman living alone in Glasgow, how she goes through crises and what she puts herself through in order to survive. (You know what must follow in these pages when the very first section is headed ‘Good Days’.) It’s also a very funny book for all that it treats with abuse, near-death experiences, anxiety and depression: Eleanor has acquaintances who support and advise her, employers and work colleagues who turn out to be sympathetic and a therapist who understands her, and it’s her reactions to them and the everyday situations she meets that provide the leavening in what could otherwise be a very dark read.

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Joining dots

Siobhan Dowd: The London Eye Mystery
Introduction by Robin Stevens
Penguin 2016 (2007)

Here’s a wonderful variation on the locked-room mystery: how can a boy who is seen to enter a pod on the famous London Eye wheel somehow disappear when the pod docks again half an hour later? Salim’s cousins, Ted and Kat, are left baffled, as are his estranged parents and Ted and Kat’s parents, not to mention the police. But by coming up with hypotheses for that disappearance and evaluating them, and by some clever underhand sleuthing, Ted and Kat slowly inch towards a solution; the worry is that, as time goes on, finding Salim will come too late to save him.

On the surface this sounds like a run-of-the-mill adventure story where children prove more than the equals of the police in solving a mystery. But The London Eye Mystery is not your average juvenile crime novel: there is a grounding in reality, in the hopes and fears of family life, in the recklessness that sometimes typifies adolescence, and in aspects of the mental processes someone on the autism spectrum may go through.

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Drowning sorrows

Jem Lester: Shtum.
Orion 2017 (2016)

For many of us life already makes huge demands — relationships, health and wellbeing, financial concerns, managing a work-life balance — but when you have a dependent with severe autism those demands are compounded, and can bring one close to breaking point. However much love is given out. Jem Lester’s Shtum is about a man in just such a position; but while it is drawn largely on the author’s own experiences bringing up a son on the autistic spectrum it is nevertheless fiction. Still, autism runs as a major strand throughout. Shtum is also about how its manifestation here fits into a bigger picture involving individuals, institutions and collective responses.

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Towards a neurodiverse world

https://openclipart.org/detail/229515/multicolored-jigsaw-puzzle-pieces
https://openclipart.org/detail/229515/multicolored-jigsaw-puzzle-pieces

Steve Silberman: NeuroTribes:
the legacy of autism and how to think smarter
about people who think differently

Foreword by Oliver Sacks

Allen & Unwin 2016 (2015)

I have to admit that this wasn’t quite what I was expected when I began it. I was looking forward to an updated discussion of what autism actually is and how people not actually on the spectrum can learn to think about those who are on it. Instead I found I was reading a 500-page doorstop of a book which provided complex case histories and followed a rigid but discursive timeline down from the 18th century. Much of the time I felt that the promises contained in the title and subtitle (particularly on describing autism’s ‘legacy’) and a confused impression about the book’s targeted audience (was it the general public or those directly affected by autism?) were being lost in a catalogue of contradictory opinions, varying terminology and distressing detail.

But then I realised that there was method in this apparent madness. By examining the general public’s confused reactions to autism’s manifestations over the centuries and the conflicting diagnoses and prognoses offered when individuals exhibited the condition Silberman was able to build up a picture of what autism was not; how those with the condition presented in a multiplicity of ways; and how — after many years seen as passive victims who might or might not be ‘cured’ — a significant number of those on the spectrum have started to self-advocate and be proactive in proclaiming its potential.

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Females with ASD

No. VI / Composition No.II 1920 Piet Mondrian 1872-1944 Purchased 1967 http://www.tate.org.uk/art/work/T00915 Creative Commons CC-BY-NC-ND 3.0 (Unported) licence
No. VI / Composition No.II (1920) by Piet Mondrian (1872-1944) Purchased 1967 http://www.tate.org.uk/art/work/T00915
Creative Commons CC-BY-NC-ND 3.0 (Unported) licence

Sarah Hendrickx
Women and Girls with Autism Spectrum Disorder:
understanding life experiences from early childhood to old age

Foreword by Judith Gould
Jessica Kingsley Publishers 2015

Autism is a lifelong, developmental disability that affects how a person communicates with and relates to other people, and how they experience the world around them. http://www.autism.org.uk/about/what-is.aspx

Autism Spectrum Disorder (ASD) was for long considered a condition solely characteristic of males, but thankfully it is now recognised that girls and women get it too. That not all professionals are up to speed on this is illustrated by the author’s own experience: only recently diagnosed herself (and this after several years studying the condition closely) she found to her distress a male clinician not only incredulous that a woman could have ASD but also questioning the reliability of the diagnosis. For females however there are many differences in their manifestation of the condition; because diagnosis of autism was traditionally based on male behaviour patterns, female presentation of those behaviours didn’t necessarily conform to male norms. In addition many females soon learn — usually better than males — how to play the game when it comes to social expectations, and this can mask their underlying condition.

But the crucial point to make is that women and girls are statistically just as likely to have the condition, and Hendrickx’s work aims to contribute to the pressing need for an “account of the female phenotype to better identify and help ASD females.” In her own case despite an IQ of over 150 and years of being a consultant on ASD (not to mention a parallel career as a stand-up) she still came late to a diagnosis; how much more pressing must it be for females who have felt they were different from what scientists call a neurotypical (NT) population but had never been in a position to establish why?

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Pretentious, moi? *

spectrum

Forgive me, I’m still bleating on about Asperger Syndrome. To change animal metaphors: I’m a terrier with a rat, reading up about the condition, its incidence and how Aspies cope or don’t cope with it.

And — as this is a literary-leaning blog — along with fascinating AS-related non-fiction titles I’m devouring (many from Jessica Kingsley Publishers) I’m also finding that the fiction that I’m reading concurrently is taking on an added perspective when AS is taken into account.

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