Women and Girls with Autism Spectrum Disorder:
understanding life experiences from early childhood to old age
Foreword by Judith Gould
Jessica Kingsley Publishers 2015
Autism is a lifelong, developmental disability that affects how a person communicates with and relates to other people, and how they experience the world around them. http://www.autism.org.uk/about/what-is.aspx
Autism Spectrum Disorder (ASD) was for long considered a condition solely characteristic of males, but thankfully it is now recognised that girls and women get it too. That not all professionals are up to speed on this is illustrated by the author’s own experience: only recently diagnosed herself (and this after several years studying the condition closely) she found to her distress a male clinician not only incredulous that a woman could have ASD but also questioning the reliability of the diagnosis. For females however there are many differences in their manifestation of the condition; because diagnosis of autism was traditionally based on male behaviour patterns, female presentation of those behaviours didn’t necessarily conform to male norms. In addition many females soon learn — usually better than males — how to play the game when it comes to social expectations, and this can mask their underlying condition.
But the crucial point to make is that women and girls are statistically just as likely to have the condition, and Hendrickx’s work aims to contribute to the pressing need for an “account of the female phenotype to better identify and help ASD females.” In her own case despite an IQ of over 150 and years of being a consultant on ASD (not to mention a parallel career as a stand-up) she still came late to a diagnosis; how much more pressing must it be for females who have felt they were different from what scientists call a neurotypical (NT) population but had never been in a position to establish why?